PANS and PANDAS UK

About

PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.  

About the condition

One estimate suggests that up to 1 in 200 children suffer from this condition. Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions. Affected children can be in mainstream, alternative, specialist provision or electively home educated. 

What we do

  • Resources for parents including diagnostic criteria and details of local support groups
  • Resources for medical professionals  
  • Resources for teachers and schools 
  • Teacher training package 
  • Facebook group for parents/caregivers 
  • Facebook group for Young People age 12 to 17 with the condition
  • Facebook group for Adults 
  • Links to further research 
  • Advocacy and support from the charity 
Referral and availability notes

Who to contact

Contact Name
Vicky Burford
Contact Position
Secretary
E-mail
secretary@panspandasuk.org
Website(s)

Availability

Age Ranges
4 to 19 year olds

Actions

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Last Updated

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